Page 1: About this survey

Thank you for considering taking part in this survey. We appreciate that this is a busy time for all those working in bereavement support and are really grateful for your help.

This survey is part of a national study funded by the Economic and Social Research Council. We are working closely with the National Bereavement Alliance, and our findings will feed directly into policy and practice. We have already collected valuable data from around 700 people bereaved since 16 March 2020, and we want to represent the views and experiences of those providing bereavement services too. Thank you for your support. 

WHO SHOULD COMPLETE THIS SURVEY?

This survey is for managers/coordinators/bereavement care leads of voluntary/community sector (VCS)* bereavement services in the UK. One person per organisation or branch (e.g. of Cruse) should complete it, but please ask others in the organisation if you don’t have the information requested. The survey is about:

  • The services you provide and how these have been affected by the pandemic
  • How the pandemic has affected the demand and need for your services
  • How the pandemic has affected staff
  • The challenges you face as an organisation

To download or print a PDF of the survey to see the questions before you start, please click here.

The information you provide will directly inform policy and practice. Interim findings from the study are publicly available at www.covidbereavement.com.

*By voluntary and community sector we mean non-profit, non-governmental organisations (e.g. charities, social enterprises, community groups). This does not include services provided solely by the NHS or commercial organisations, but does include palliative care or other bereavement services part-funded by the NHS. Please do not complete if your service is based within the NHS and receives no charitable funding. Eligible bereavement services could be stand-alone or embedded within a larger organisation.

ABOUT THIS SURVEY

Background: Bereavement is associated with increased risks to mental and physical health, which are likely to have increased during the COVID-19 pandemic when bereaved people have had less access to support from family and friends. Appropriate support following bereavement is essential, but bereavement services have faced many challenges during the pandemic and have had to adapt to difficult circumstances.

Purpose: This survey aims to understand the bereavement support available during the COVID-19 pandemic, how bereavement services and providers have been affected, and how services have responded to the challenges of the pandemic.

Deadline: This survey closes on 30th April 2021

DATA PROTECTION

Before you decide whether to consent to participate, please read the information below.

Voluntary participation: Participation is voluntary, you may choose not to answer survey questions unless these are required. If you decide to withdraw at any stage, you do not have to give a reason why.

Confidentiality: The information you provide will only be seen by the project staff who are undertaking this study. Any information we publish that might identify you, or others, will be anonymised.

Data protection and usage: All data collected in this survey will be held securely at the University of Bristol in accordance with the General Data Protection Regulations (GDPR; EU 2016/679). For more information on data protection, please follow the link: General Data Protection Regulation (GDPR; EU 2016/679). Cookies, personal data stored by your web browser, are not used in this survey.

By participating in this survey, you are agreeing that your survey responses and anonymised extracts of text may be included in future reports, professional journals and future research. The results will be disseminated via newsletters, blogs, conferences, peer-reviewed journal articles, press releases, social media and the study website [www.covidbereavement.com]. The anonymised data will be archived and might be used in secondary analysis or for educational purposes in the future. Your personal data (identifying information) will be kept securely for 10 years after the research is completed in line with University of Bristol policies in addition to GDPR.  

Risks and benefits: When using the internet, there can be a risk of compromising privacy, confidentiality and/or anonymity. We are using a secure platform to conduct the survey to minimise these risks. By completing this survey, you are helping understand the bereavement support currently available and how bereavement services have been affected by and responded to the challenges of the COVID-19 pandemic. 

Contact information: If you have any concerns or questions relating to this survey, please contact Dr. Eileen Sutton, Senior Research Associate at e.sutton@bristol.ac.uk or 07977021723

Additionally, if you have a concern about the conduct of the study, please contact Dr. Lucy Selman at lucy.selman@bristol.ac.uk, Palliative and End of Life Care Research Group, University of Bristol, Canynge Hall, 39 Whatley Road, Bristol BS8 2PS. If you have a complaint about the study, please contact the University’s independent Research Governance team by emailing research-governance@bristol.ac.uk. Complaints or concerns are taken seriously and will be addressed immediately.

INSTRUCTIONS FOR COMPLETION

  • One representative from each bereavement support organisation (or branch of an organisation) is eligible to take part. This will usually be a paid member of staff (e.g. manager, service lead) but could be a volunteer.
  • Please ask others in your organisation for any information requested which you don’t have yourself.
  • The survey should take 20-30 minutes to complete.
  • Please add any comments in the blank boxes that you feel are relevant or important. Feel free to use bullet points.
  • The survey is designed to capture information on many different types of services and some questions may appear less relevant to you. We would be grateful if you could please try to answer all questions that apply.
  • You can save your responses and return to complete your survey later. To do so, please click on the 'finish later' link at the bottom of the page. You will then need to either bookmark your unique URL link in your browser or ask for it to be emailed to you.
  • You can navigate the survey and edit your answers up to the point you click the 'finish survey' button. To go back in the survey (e.g. to revise a response), please click the ‘previous’ button at the bottom of the page. 

CONSENT: By agreeing to participate in this survey, you indicate that you have read and understood the information above and that you are aged 18 or over.

1.1. Consent:  I consent to participate in this survey and I agree that I have read and understood the information provided above. Required